CHARGE syndrome is a genetic disorder - a mutation of a dominant gene on chromosome 7. It affects 1 in every 10,000 children with a 20-25% mortality rate within 2 years of age. The name itself is an acronym for the defining characteristics of the disorder:

C - Coloboma of the Eyes (misshapen pupils)
H - Heart Defects
A - Atresia of the Chronae (narrowing of the passage between the nasal sinus and the mouth)
R - Retardation
G - Genital malformation
E - Ear abnormalities and/or hearing loss

This tribe is for parents or educators of children with CHARGE syndrome, to discuss new findings, educational implications, or to share frustrations or success stories.

http://chargesyndrome.tribe.net